About Charles Bonnet Syndrome Foundation

Charles Bonnet Syndrome Foundation

About us

Room:  2.16

Tenant Phone: 1300 121 123 or 0424 557 025

Email: info@charlesbonnetsyndrome.org

What we do:

Charles Bonnet Syndrome (CBS) is the experience of a vision-impaired person ‘seeing’ things that are not really there (ie. phantom images). Even though the images can be remarkably vivid and detailed, the CBS-affected person typically recognises that what they ‘see’ is not – or cannot be – real.

CBS affects up to 40% of all people who develop vision loss. This means it’s incredibly common. Yet two factors have kept CBS amazingly well-hidden: (a) the person experiencing CBS is scared they’re losing their mind so they don’t speak up and (b) health care providers tend to not raise the issue.

The principal aims of the Charles Bonnet Syndrome Foundation (CBSF) are:

  • To assist people living with Charles Bonnet Syndrome (and their significant others)
  • To raise awareness of CBS within the general community
  • To educate medical and health care practitioners of its clinical profile.
  • Advocate for better recognition of CBS within health departments and for resources to be allocated accordingly
  • To promote further research into CBS

Website: www.charlesbonnetsyndrome.org

Facebook link: www.facebook.com/cbsfoundation/

Accepts donations: Yes, donations over $2 are tax deductible

Learn more about CBS by watching this video.

  • Room 2.16.2